Three-Year-Old Girl Seeks Urgent Government Funding for Life-Saving Bone Marrow Transplant

Urgent Plea to the Delhi High Court

A three-year-old girl suffering from a rare genetic disorder has approached the Delhi High Court through her father, requesting immediate government financial assistance for a life-saving bone marrow transplant. The family has urged the court to direct the central government to release the necessary funds without delay, arguing that any postponement could pose a serious threat to the child's life. During a vacation bench hearing on June 5, Justice Amit Sharma issued a notice to the central government and granted time for a response. According to reports, the case is scheduled to be presented before the vacation bench on June 8.

Details of the Petition

The petition has been filed by Anuj Agarwal and Company, Advocates, led by lawyer Ashok Agarwal. It requests the Ministry of Health and Family Welfare to authorize and release the full amount required for the child's haploidentical bone marrow transplant and post-operative care directly to Apollo Hospital in Chennai, where the procedure has been recommended. The petition also seeks to ensure that treatment commences without any further delays. The child, known as Sanchi Bhagat, suffers from a deficiency of LRBAP (Lipo-polysaccharide-responsive beige-like anchor protein), a highly rare genetic disorder that severely impacts the body's immune regulation, making the patient susceptible to recurrent infections and serious autoimmune complications.

Family's Medical Journey

The family states that the diagnosis came after extensive medical treatment. The petition mentions that the child began experiencing recurrent fevers and severe anemia within months of birth, necessitating multiple blood and platelet transfusions. Following consultations at Delhi AIIMS, Vellore CMC, and other specialized centers, a comprehensive genome test conducted in 2025 confirmed the diagnosis of LRBAP deficiency.